The annual MND parliamentary reception was held on Tuesday 17 October 2017 in partnership with the All-Party Parliamentary Group (APPG) on motor neurone disease (MND).
Over 130 volunteers travelled to Westminster in October last year including 39 people living with MND, the largest ever gathering of people with MND at an Association event. Our own West Dorset Branch was represented by Richard Sloan, Jon and Jenny Ash and Richard Saunders pictured with MND Patron, TV presenter and “Strictly” contestant Charlotte Hawkins whose father died of MND.
Over 50 parliamentarians were represented at the reception from a variety of constituencies across the country.
Volunteers spoke to MPs from their area about issues that affect people living with MND, such as the additional financial cost of living with MND and shared personal experiences.
The APPG on MND launched their highly anticipated report on access to Personal Independence Payment (PIP). The inquiry found that people with MND were experiencing problems throughout the PIP process – from finding out about the benefit in the first place, to being reassessed unnecessarily. The APPG is to lobby the relevant ministers and government departments to correct these extra burdens that people have to face.